What’s Worth Knowing: Insight for Caregivers and Those Being Cared For

What’s Worth Knowing: Insight for Caregivers and Those Being Cared For

It’s often very easy for us to give of ourselves but we all know that person who gives and gives but when they need help, they refuse to receive it.

Being able to receive graciously is a gift.

I facilitate three caregiver support groups.

I hear from lots of caregivers from the caregiver point of view.

In this blog I’d like for us to think about the point of view of the person who is receiving the care.


One of my favorite books is Wendy Lustbader’s book What’s Worth Knowing.

She uses the format of interviewing several older adults and asking them “what is worth knowing” about a certain topic.

I’m going to use that same format about what is worth knowing from someone who is receiving the care.


60 is different than 90, you can’t lump everyone together

Often as a caregiver we get sucked into the stereotypes of older persons and if we know a disabled 60 year old or a frisky 90 year old then we expect the person we are caring for to be the same.

That can lead to resentment or unmet expectations.

We need to realize, for the sake of the person receiving care that each person ages differently.

We need to treat that person as who they are, not as who we want them to be or expect them to be.


 Old age is not for the faint of heart

A care receiver’s life can be very humbling and very hard to take.

They find themselves outliving friends, family, spouses, children or grandchildren.

Also the losses of an older person go beyond the obvious loss of death.

Other losses include independence, health, home, income, and security to name a few.


Problems arise and the caregiver and care receiver find that they arrive at two very different solutions; one grounded by what the older person’s life experience is saying to them, the other on what the caregiver thinks is the right thing to do.

Someone once said that a caregiver and care receiver should have one ground rule; there is no single “right” answer.

When they accept that, they stop resisting any opinion except their own and they become open to seeing where someone else is coming from.

That’s the beginning of a constructive dialogue and an easier life for both parties.


Listening is really important

I often think when problems arise in a care giving situation one of the main reasons is that people quit listening, both the caregiver and care receiver.

The caregiver gets wrapped up in all the challenges they are dealing with and stops listening to the care receiver.

Often times that is all they need to do to solve a problem, just let the care receiver have their say.

Even a person with dementia needs to be listened to.


 The care receiver gets so bogged down with their loss of independence that they never ask what the caregiver is thinking or how they are dealing with a certain situation.

We need to remember that care receivers are not “less than” because they need care and caregivers are not “better than” because they give care.


Persons who find success in old age have learned to like their own company

Many times I have heard a caregiver complain “mother just doesn’t want to do anything…she just sits there all day…why can’t I get her to do anything?”

I believe that it is important for a caregiver to give the person they are caring for as many options as possible, then live with what they choose.

Too often the caregiver wears themselves out feeling that the person they are caring for wants and needs to stay active/busy all the time.

Sometimes they might just want to sit still and contemplate.

This does not preclude suggesting that staying active is healthy but being active doesn’t have to be all consuming.


Make lemonade out of lemons

None of us look into our futures and see ourselves as being dependent on another.

We dream of independence and dread the thought of anything else.

When we lose our dependence then problems arise.

We can decide to make those problems into challenges and face them or we can continually hit our heads against a brick wall and say “poor me.”

Your life can never be the same as it was before you needed care but your capacity to be cared for and to be loved is still yours to choose and to treasure.


To learn more about addressing the needs of older adults, click here to visit the Older Adult Ministry page.

Pat discovered her special gift of working with family caregivers in the early 80’s when she started her first Caregiver Support Group.  Since that time she has facilitated caregiver support groups in Texas, Oklahoma and Georgia. She presently is facilitating three support groups: one for employees of Gwinnett County who are caregivers, one for the Emory Integrated Memory Care Clinic caregivers and one in her home which she has had since 2002.  She is a Certified Trainer for the Rosalynn Carter Institute for Caregiving’s- Dealing with Dementia Workshop.

Besides her board work with POAMN she is the current Vice-President of the Georgia Gerontology Society Board of Directors and serves on the FRIENDS of Gwinnett Senior Board of Directors. FRIENDS is a 501C3 that raises funds and advocates for the most vulnerable seniors in the county.

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